9.13.2007

liam on the telly


Forgive the completely non-letterpress post, but we've got some exciting news! It's not all just letterpress around here...

I wanted to let you know that there will be a story about Liam and our continuing battle with our insurance company, Assurant Health, airing on Good Morning America next week. Right now it is scheduled to run on Wednesday, September 19th somewhere between 7:30-8:00am. Please pass this on to anyone who might be interested. If you're like us, you'll need to get your TV down from the attic, dust it off and figure out what channel ABC is! We spent an entire day with a crew from GMA about two weeks ago and we are really hopeful about the influence this story might have — not just for our family, but for many other Americans who are similarly falsely insured.


A little background ... Assurant Health, to whom we have dutifully paid premiums for 7 years now, has denied and continues to deny benefits for Liam's power chair. After exhausting the avenues of appeal within Assurant, taking our case to the Oregon Insurance Board (where after an initially good response, our case was mysteriously closed one day), hounding the high-ups of Assurant (many thanks to my mom) – it comes down to trying to effect a change with media attention. Despite the fact that Liam's Snappie is both a medical necessity and durable medical equipment, Assurant has refused to pay out benefits. Their reasoning: they just don't cover power wheelchairs and, also, they cannot make exceptions to just one policy holder as that would be 'unfair'.' One employee at Assurant went so far as to suggest that perhaps we should have read our policy more carefully before having a child. Need I say that there is no way that we could have possibly known Liam would need a power chair? I don’t think it’s necessary to elaborate on how very wrong that statement is, in every way.

I’d like to point out that Assurant’s so-called code of ethics, as posted for anyone to read on their website, include the following excerpts — all of which are negated by their real actions and decisions.

The companies that survive longest are the ones that work out what they uniquely can give to the world-not just growth or money but their excellence, their respect for others, or their ability to make people happy. Some call those things a soul ... We offer products and services that touch people's lives, and our business depends on the trust and confidence we earn from our employees, customers and shareholders. In everything we do, we should remember that people count on us. At Assurant, we are proud of our long-standing commitment to operate according to our values-common sense, common decency, uncommon thinking and uncommon results. Everything we say and do is governed by the highest ethical standards and integrity.
One of Assurant’s CEOs. Raj Bal, sits on the board of directors for the Penfield Children’s Center in Milwaukie, Wisconsin. Their motto? "Never underestimate the capacity of the very young, and never, never let them down.” Well, let it be said — loud and clear and on national television ! — Liam has been let down.

I realize that we are very fortunate, in the face of all this, to have had the financial freedom to get Liam his Snappie over a year ago. We understand and appreciate that we are lucky in this regard. We also know that early childhood mobility is critical to the physical, social, emotional well-being of these young kids. I believe that Liam would not be the happy, outgoing, independent little boy he is today, at three and a half, if we had not gone to England when he was twenty months old. I believe that if we were still at the whim of Assurant, if we were still waiting and relying on them to come through for us, Liam would be a different child. Thank you to everyone who has made his Snappie a reality.

Please tune in next Wednesday and please let others know. We will let you know if the schedule changes. The bonus to watching it: seeing and hearing Liam sing his newest song to Assurant {totally unprompted and unplanned, I swear!} – bad boys, bad boys, what you gonna do when they come for you? So take that, Assurant.

9 comments:

britnrobb said...

I watched this on GMA this morning and was enraged. There has been a lot of this insurance talk going on lately and I think it is great that it is getting on the top watched shows including Oprah. I used to work for an insurance company and this is the exact reason I quit because the treat their employees just as bad as they do the consumers. They are all about making the money. I thought it was humorous how they said that they couldn't give one person something that they might have to deny to another because of it being unfair but then they will also say that things are done by individual review. So how they said today that insurance companies will write out the contracts so that it leaves big loops for them to decide whatever they want is completely true. We all need to work together and take the power back from these multi billion dollar companies.

keisha said...

Really......should a four year old be driving a motorized device ? Is that safe ? Does this "Snappie" have a remote control for the caregiver/ parents ? Or should we not under estimate the power of a very young boy ? Sure he's probably smart as a whip, but he is still a 4 year old boy. They like to play. When He slams himself into a wall or off of steps, then that's more claims to be paid.

satsumalynn said...

Keisha,

I'm not sure where you're coming from and I am going to do my best to be polite here. I will warn you, however, that this is not an easy task. I think it's possible you just hit a very raw nerve. In fact, I know this is the case.

Yes, in my opinion, a four year old who requires power mobility should have power mobility. There are many child development experts who will agree with me. Children with mobility limitations, such as Liam, should acquire mobility at as early an age as possible. Otherwise, they develop learned helplessness that will follow them throughout their lives. Liam began training in a power chair at 16 months old and I wish it had been sooner.

You ask: is it safe? Well, is life safe? No, it is not. Would you have Liam sitting immobile on the floor because you fear for his safety or, as you suggest, that the insurance company will just have more claims to pay for?! Toddlers learning to walk often fall off steps, crash into the wall, bang their chins on the corner of a table. Children get hurt. Life is a sometimes dangerous event, isn't it? I do the best I can for Liam. Believe me, his Snappie is the very best choice.

I realize that you can counter with the fact that a 'normal' toddler may fall down, but that it is not the same as a wheelchair toddler crashing. No one understands this more than me, I hope you realize this. There is no remote control for Liam's Snappie and there will not be one. I do not expect to be able to control my child via a remote control. He is expected, as I would expect from ANY child, to learn safety rules. His ability to drive a power chair safely was fully documented before we ever submitted a claim to insurance.

You write: they like to play. Well, once again, I couldn't agree more. Little boys like to play. Liam likes to play. Are you seriously suggesting that Liam should PLAY and live his life according to insurance industry safety standards?

Please, I ask you to reconsider your position. This is my life, this is Liam's life. I know, without a doubt, that without his Snappie, Liam would not be the engaging and engaged little boy he is today. I would not change that based on your opinion which, to me, is directly in line with that of the insurance company mega-corporations.

So, in the end, I am immeasurably proud of Liam and of our choices to give him what he needs. Is it fair that he needs power mobility? NO. Is it fair that our insurance company, Assurant, has denied him what he medically and socially needs? NO. Is it sometimes scary to be the parent of a wheelchair toddler? Hell, YES. Would I ever take this mobility from him so his life could be 'safer'? NO, NEVER.

Lynn.

Ruth said...

Keisha,

Do you drive or ride in motor vehicles? Because the data on how dangerous that can be is terrifying. Indeed, when a car slams into a wall or off of steps, then that's more claims to be paid. Where is your data about young children causing damage in powered wheelchairs?

I was the first "wheelchair toddler": mobile at 20 months at a time when your opinion was prevalent. My parents were presented with a host of inappropriate chairs, designed for adults and yes, probably impossible for me to control. As a direct result of the revolution I was at the beginning of, a chair exists which enables Liam to play, run and be the little boy his instincts tell him to be.

When I meet disabled children like Liam - and I have met and worked with many - it is my experience that the child who learned to move on time (a child should walk by the age of two) is considerably safer than the one who sat for five years or more before getting mobility, learning that the world goes on around you regardless of your own actions.

In addition, as a result of an integrated upbringing, Liam will grow up to work, raise his own family and buy his own health insurance instead of being an inevitable drain on your nation.

Until you change your opinion, I suggest you do not get in any cars or buses and don't let your kids cross the street - very dangerous indeed.

Ruth

keisha said...

Thanks all for answering the questions. It is very clear. I have to play devil's advocate to get facts and not just feelings. I was hoping for factual responses like those. I thought and thought about why an insurance company would not pay that claim....and that was the only reason I could glean. Liam is a very addorable child and I hope that he gets his "Snappie" soon.

satsumalynn said...

Keisha,

Thanks for coming back to read and respond again. I really do appreciate you taking the time to consider our side of the story.

Just to be clear – Liam already has his Snappie, though Assurant has not paid for it. That's the never-ending battle and one that Good Morning America focused on.

Again, thanks for taking time to hear me out and reflect on the situation.

Lynn

Katie said...

Hello Russell family,

I am a friend of an SMA friend in Oregon and I was overjoyed that GMA would bring light to such a relevant issue for families with children who need mobility. I have worked with children who need power mobility for a while now and couldn't agree with your standpoint more.

Seeing children who have not had a power chair at a young age are definitely more "scary" than a child who has grown up with a chair, learning to use it much like children learn to walk and maneuver their own two feet. Good work to you for bringing this to light and best of luck in your pursuit of fair and equal access for all children!

Katie
Portland, OR

Neva said...

Hi Lynn,

I'm a friend of Beth and she shared Liam's story with me. I'm disabled myself and have had my own challenges with insurance companies and with Social Security. Before I got sick, I was always under the impression that this country took care of the disabled. I learned quick how wrong I was when I found myself sick and trying to get help. It's insane!

Anyway, I'm writing just to say you and your family are in my thoughts and prayers. I hope everything works out for you sweet little boy, and please contact me if there's anything I can do, like write a letter or something.

Take care,
Neva (nevarose-at-yahoo.com)

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